{"id":8840,"date":"2023-02-13T07:47:52","date_gmt":"2024-02-25T14:59:07","guid":{"rendered":"https:\/\/003.chilluh.nl\/nord-rare-disease-day-2024\/"},"modified":"2023-02-13T07:47:52","modified_gmt":"2024-02-25T14:59:07","slug":"nord-rare-disease-day-2024","status":"publish","type":"post","link":"https:\/\/werelivingwell.com\/iikzdp-nord-rare-disease-day-2024-gclvdmhrf-photos\/","title":{"rendered":"Nord Rare Disease Day 2024"},"content":{"rendered":"<div class=\"cd5c096581fd5fc23b44a4969c1e3c2e\" data-index=\"1\" style=\"float: none; margin:10px 0 10px 0; text-align:center;\">\n<div style='text-align: center;'>\r\n<script type=\"text\/javascript\">\r\n\tatOptions = {\r\n\t\t'key' : '0a1f35073c594f712b44ac459670782f',\r\n\t\t'format' : 'iframe',\r\n\t\t'height' : 250,\r\n\t\t'width' : 300,\r\n\t\t'params' : {}\r\n\t};\r\n\tdocument.write('<scr' + 'ipt type=\"text\/javascript\" src=\"\/\/www.profitablecreativeformat.com\/0a1f35073c594f712b44ac459670782f\/invoke.js\"><\/scr' + 'ipt>');\r\n<\/script>\r\n<\/div>\r\n\n<\/div>\n<p>\t\t\t\t<![CDATA[\n\n<p><b>Nord Rare Disease Day 2024<\/b> &#8211; When Nell Choi of McLean, Virginia, was just 9 years old, she began experiencing debilitating dizziness and nausea. After an MRI showed inflammation in her brain stem, she was diagnosed with  . Jonathan Kowalske tapped more than 20 breweries to brew the IPA and raise money for the rare disease community. .<\/p>\n\n\n\n\n<h2>Nord Rare Disease Day 2024<\/h2>\n\n\n\n\n<p align=\"center\"> <a title=\"Rare Disease Day at NIH 2024   National Organization for Rare \"><img decoding=\"async\" src=\"https:\/\/rarediseases.org\/wp-content\/uploads\/2023\/12\/NCATS_RDD_LogosStacked_2024_Blue.jpg\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n\n\nSource : <a href=\"https:\/\/rarediseases.org\">rarediseases.org<\/a>\n\n\n<h2>Rare Disease Day 2024   Keck Graduate Institute March 2, 2024, 10 <\/h2>\n\n\n\n\n<p align=\"center\"><a title=\"Rare Disease Day 2024   Keck Graduate Institute March 2, 2024, 10 \"><img decoding=\"async\" src=\"https:\/\/www.kgi.edu\/\/wp-content\/uploads\/media\/Unorganized\/NORD-1.png\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n\n\nSource : <a href=\"https:\/\/www.kgi.edu\" rel=\"nofollow\">www.kgi.edu<\/a>\n\n\n<h2>National Organization for Rare Disorders, Inc. (NORD)<\/h2>\n\n\n\n\n<p align=\"center\"><a title=\"National Organization for Rare Disorders, Inc. (NORD)\"><img decoding=\"async\" src=\"https:\/\/lookaside.fbsbx.com\/lookaside\/crawler\/media\/?media_id=776800824474315\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n\n\nSource : <a href=\"https:\/\/www.facebook.com\" rel=\"nofollow\">www.facebook.com<\/a>\n\n\n<h2>Rare Disease Day 2024 Presented by Stanford Students for Rare <\/h2>\n\n\n\n\n<p align=\"center\"> <a title=\"Rare Disease Day 2024 Presented by Stanford Students for Rare \"><img decoding=\"async\" src=\"https:\/\/rarediseases.org\/wp-content\/uploads\/2024\/02\/Stanford-RDD.jpg\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n\n\nSource : <a href=\"https:\/\/rarediseases.org\" rel=\"nofollow\">rarediseases.org<\/a>\n\n\n<h2>NATIONAL ORGANIZATION FOR RARE DISORDERS (NORD)   Rare Disease Day <\/h2>\n\n\n\n\n<p align=\"center\"> <a title=\"NATIONAL ORGANIZATION FOR RARE DISORDERS (NORD)   Rare Disease Day \"><img decoding=\"async\" src=\"https:\/\/www.rarediseaseday.org\/wp-content\/uploads\/usa.jpg\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n\n\nSource : <a href=\"https:\/\/www.rarediseaseday.org\" rel=\"nofollow\">www.rarediseaseday.org<\/a>\n\n\n<h2>Public meeting: FDA Rare Disease Day 2024   National Organization <\/h2>\n\n\n\n\n<p align=\"center\"> <a title=\"Public meeting: FDA Rare Disease Day 2024   National Organization \"><img decoding=\"async\" src=\"https:\/\/rarediseases.org\/wp-content\/uploads\/2023\/12\/RDD-2024_Web-Graphic_FINAL-01.png\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n\n\nSource : <a href=\"https:\/\/rarediseases.org\" rel=\"nofollow\">rarediseases.org<\/a>\n\n\n<h2>Rare Disease Day Celebration with NORD   Positive Exposure<\/h2>\n\n\n\n\n<p align=\"center\"> <a title=\"Rare Disease Day Celebration with NORD   Positive Exposure\"><img decoding=\"async\" src=\"https:\/\/i0.wp.com\/positiveexposure.org\/wp-content\/uploads\/2024\/02\/Poster-for-Positive-Exposure-scaled.jpg?fit=1707%2C2560&amp;ssl=1\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n\n\nSource : <a href=\"https:\/\/positiveexposure.org\" rel=\"nofollow\">positiveexposure.org<\/a>\n\n\n<h2>NORD&#8217;s Rare Disease Day Policy &amp; Advocacy Town Hall   National <\/h2>\n\n\n\n\n<p align=\"center\"> <a title=\"NORD's Rare Disease Day Policy &amp; Advocacy Town Hall   National \"><img decoding=\"async\" src=\"https:\/\/rarediseases.org\/wp-content\/uploads\/2024\/02\/NRD-2315-RDD_Social-Media-Assets-Policy-Town-Hall_IG.jpg\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n\n\nSource : <a href=\"https:\/\/rarediseases.org\" rel=\"nofollow\">rarediseases.org<\/a>\n\n\n<h2>National Organization for Rare Disorders | LinkedIn<\/h2>\n\n\n\n\n<p align=\"center\"> <a title=\"National Organization for Rare Disorders | LinkedIn\"><img decoding=\"async\" src=\"https:\/\/media.licdn.com\/dms\/image\/D4E3DAQENjrLUxFBnNw\/image-scale_191_1128\/0\/1704383598864\/national_organization_for_rare_disorders_cover?e=2147483647&amp;v=beta&amp;t=ojRAua2-MCCcdfdUtBlGt29C4BYt-x5garSaDhLE9v8\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n\n\nSource : <a href=\"https:\/\/www.linkedin.com\" rel=\"nofollow\">www.linkedin.com<\/a>\n\n\n<h2>Zebra Trot A Thon   National Organization for Rare Disorders<\/h2>\n\n\n\n\n<p align=\"center\"> <a title=\"Zebra Trot A Thon   National Organization for Rare Disorders\"><img decoding=\"async\" src=\"https:\/\/rarediseases.org\/wp-content\/uploads\/2024\/02\/Poster-for-San-Antonio-Zoo-5K-01-scaled.jpg\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n\n\nSource : <a href=\"https:\/\/rarediseases.org\" rel=\"nofollow\">rarediseases.org<\/a>\n\n\n<p><b>Nord Rare Disease Day 2024 Rare Disease Day at NIH 2024   National Organization for Rare <\/b>:   The Jacobs School of Medicine and Biomedical Sciences and the School of Pharmacy and Pharmaceutical Sciences are doing just that by hosting the Rare Disease Day symposium, \u201cCare for Rare: From Bench  . ALS affects approximately 30,000 people in the U.S.; with such small numbers, our awareness and advocacy voice is barely heard. But when we join in with the 300 million people representing the global  . <\/p>\n\n\n]]>\t\t<\/p>\n\n<div style=\"font-size: 0px; height: 0px; line-height: 0px; margin: 0; padding: 0; clear: both;\"><\/div>","protected":false},"excerpt":{"rendered":"<p>\t\t\t\t<![CDATA[]]>\t\t<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[57],"tags":[],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/posts\/8840"}],"collection":[{"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/comments?post=8840"}],"version-history":[{"count":0,"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/posts\/8840\/revisions"}],"wp:attachment":[{"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/media?parent=8840"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/categories?post=8840"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/tags?post=8840"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}